Wow…. I can’t believe it has been a couple years since I have wrote on here. So much has happened, I won’t even try to bore you with all the details. ; ) But… years 3 -5 I had no new progression!!! Had a scare with my 5 year scan, the radiologist reported there was a new lesion, I freaked majorly. My neuro went through all my previous scans and found it in a previous scan from 2o11 or 2o12 (I can’t remember which), so crisis averted. I am still in remission. 😀
Couple pictures from our last time in Chicago for HSCT related reasons, we didn’t know it would be our last time, to top it off I didn’t take many pictures for once. Lol:
Even… ok you know what, side note here: It has been so long since I’ve been on here and they have changed so much. I am getting slightly discouraged. I can’t keep my text the way I want it, so I give up. So if the text changes I apologize, lol.
So as I was going to say, even with that great news I am still struggling with my MS symptoms. Some days are really good, some days are really bad, and some are ok. I just at times feel useless to this world. This pandemic does not help. Mentally I have been a mess. I hope everyone is staying as safe as you can and hang in there. Speaking of pandemic…. vaccine. It is fantastic news, and if I was a normal person health wise, I wouldn’t hesitate at all to get it, but here’s the thing… Dr. Burt I know was not all for vaccines or getting revaccinated if you lost immunity to some, which I did, but could depend on herd immunity. Regarding the flu, I just stayed as safe as I could during flu season. But Covid. I can’t keep living like this. It is not even just MS or HSCT, I have other risks for Covid also. I am leaning towards risking it and getting the vaccine, but I’m absolutely terrified. I will be talking to my neuro about it on feb. 4th, but I know in the end it will be up to me. I don’t know what the likely hood is that this could bring my MS out of remission, and Dr. Burt has left so can’t talk to him. So that is my next dilemma, and it scares me so badly. Both are horrible diseases, one is just much more deadly. I just can’t imagine going back to the way I was progressing at such an alarming and fast rate, so much unknowns, scared as things got taken away from me (ex. vision issues, feelings, energy, & more). Whether this makes sense I don’t know, I’m just confused and freaked out and I wish Covid would just disappear, but we all know that will not happen. 😦
What have ya’ll been up to if you’ve been staying isolated? Or staying home more than usual? I have been hooked on animal crossings for the switch most of the time. I burnt myself out on that. Now I’m playing House Flipper. Haha don’t judge. My son makes fun of it, but there is something relaxing about cleaning up and renovating houses. Hehe. Otherwise I’ve been working on my crafts when I’ve been up to it, trying to keep up with exercising. One thing I don’t know what I would have done without this past year is my kitties. My kitties and some of my fav. craft projects from last couple of years:
One thing I miss so very much, is missing a year of my nephew’s life, when he grew the most. He’s a year and a half now. I am beyond grateful we got to spend some time with him on Christmas Eve, masked up and safe as could be of course. 🙂 And I am beyond excited and so blessed as I have another niece or nephew on the way! ❤
Well that’s my update after 2 + years. I will update once I know for sure when/if I get the vaccine and how it goes if I do. Otherwise for now, as hard as it is staying home and staying safe for 1o months, I just try to remember how blessed I am that I am still in remission and how lucky I am for the few people I have in my life. I look forward to the future. ❤
Everyone stay SAFE. And if you’re struggling, hang in there. I’m not going to say who on here, but someone very dear to me had struggled a lot in the past couple years, and at points this year was at the lowest you can be. I also know of others who have tragically done the unthinkable and taken their own lives as they thought they had no other choice. PLEASE please reach out. There are people who always care. Please believe me.
– Carina ❤